Hard Life

Hard Life

Yeah, it’s a hard life But I’m okay If I didn’t have this, I wouldn’t be who I am today And I have lots of friends Oh, and I have love And yeah, I have a hard life but in some ways everybody...
What I Can Do

What I Can Do

“What I can do is offer myself, wholehearted and present, to walk with the people I love through the fear and the mess. That’s all any of us can do. That’s what we’re here for.” ~ Shauna...
All About Your Heart

All About Your Heart

This is not the first song I’ve shared and it won’t be the last. Enjoy! All About Your Heart by Mindy Gledhill   I don’t mind your odd behavior It’s the very thing I savor If you were an ice cream flavor You would be my favorite one My imagination sees you Like a painting by Van Gogh Starry nights and bright sunflowers Follow you where you may go Oh, I’ve loved you from the start In every single way And more each passing day You are brighter than the stars Believe me when I say It’s not about your scars It’s all about your heart You’re a butterfly held captive Small and safe in your cocoon Go on you can take your time Time is said to heal all wounds Oh, I’ve loved you from the start In every single way And more each passing day You are brighter than the stars Believe me when I say It’s not about your scars It’s all about your heart Like a lock without a key Like a mystery without a clue There is no me if I cannot have you Oh, I’ve loved you from the start In every single way And more each passing day You are brighter than the stars Believe me when I say It’s not about your scars It’s all about your heart     Heart image courtesy...
I Am

I Am

Music is one of the main ways I deal with the ups and downs of life – it always has been and I imagine it always will be. Playing the piano has always been an outlet for me and I always feel emotionally recharged when I’m done. I soak up lyrics like my life depends on it. So when I faced the life changing experience of special needs motherhood, I found some of my greatest comfort through playing and listening to music and finding lyrics that helped me through my journey. Chloe, probably by default, also loves music. Before we had her seizures under control, one of the only things that stopped her from screaming would be laying right by the piano while I played it. A neurologist once told me the different vibrations are probably what did it. Needless to say, I did a lot of piano playing in those early months! We also got her involved with music therapy that we still use to this day.¬†Many¬†different songs have helped and inspired me (and continue to do so) through a lot of different rough times. Music to me is like breathing. I don’t get tired of breathing and I don’t get tired of music. ~Ray Charles When a song comes together with awesome music and lyrics that touch on a subject close to my heart, it immediately becomes a favorite. That’s what happened with this song, I Am by Vinyl Hearts. Inclusion has conceptually been important to me since I can remember. The older Chloe gets, however, and especially the more she recognizes her differences and feels sad...
GoBabyGo – Bringing Mobility to Children

GoBabyGo – Bringing Mobility to Children

Do you remember this video? It’s a video about GoBabyGo with Cole Galloway sharing his vision for bringing mobility to young children. It went slightly viral in the special needs community several months ago as parents were moved by the idea of their child being able to move in a vehicle adapted just for them. Wheelchairs and other mobility tools are reserved for children over the age of three. This is very typical, insurance only buys a wheelchair or stroller every 3+ years. With costs into the several thousands, parents generally cannot afford to provide their kids with smaller mobility choices (and frankly, because of that, there aren’t many options out there for the peanuts!). This misses critical developmental milestones! You think typical 2 and 3 year old get frustrated, imagine 2 and 3 year olds with disabilities! Simple, quick modifications provide mobility for children for under $250. Pretty incredible. I am bringing this program up because it hit home for me this week as a couple of my friends in HoPE shared with the Holoprosecephaly support group pictures of their children trying out their own cars, adapted just for them, by students at Oregon State University. Mom Larisa shared that her daughter Mia (In the top picture) even got mad when they stopped her which was a huge step in her development! This is something Dylan is just going through now, at 7, and I have never been more proud of a fit before in my LIFE. I can totally relate to how proud this must have made her mama! She found a new found freedom in being...