You’re No Burden, I Assure

You’re No Burden, I Assure

One day running errands with Chloe in her wheelchair and carrying my baby Sam, a very nice lady stopped me to chat about Chloe. She ended by saying, “thank you for carrying such heavy burdens and still being such a happy person.” I know she meant that with all the compassion and empathy in the world and I certainly wasn’t offended, but for Chloe’s sake I wanted to just shout from the rooftops that she is not a burden! These lyrics came to mind: You may need me to carry all your weight, but you’re no burden, I assure. You tide me over with a warmth I’ll not forget and I can only give you love....
What I Can Do

What I Can Do

“What I can do is offer myself, wholehearted and present, to walk with the people I love through the fear and the mess. That’s all any of us can do. That’s what we’re here for.” ~ Shauna...
Ta Da!

Ta Da!

I don’t know a person who isn’t busy. Everyone’s got a to do list a mile long. I’ve attended several workshops on living a life that makes you happy and almost always one of the main points they make is the importance of setting long-term, short-term, and daily goals. I used to use a to do system that looked something like this: So obviously I never actually wrote a to do list like that, but I just had a mental list that was a lot like that and it is pretty comical to think that would ever work. I always knew I had a lot to do, but all that stuff was just jumbled all together and I always felt overwhelmed. So since that wasn’t working and after attending a workshop that reminded and motivated me to live a more purposeful and meaningful life, I got an app that helped me keep track of tasks and goals. That definitely made me more efficient, but after awhile, I started to recognize a trend. Almost every day, things came up and made it so I couldn’t complete everything I had planned. And the majority of the time, the things that came up had to do with being a caregiver to a child with seizures, muscle pain, therapies, IEP’s, sensory issues, medical procedures, medical appointments, etc., etc., etc. If you’re reading this, I’m sure you understand. One day I was feeling discouraged about all I wasn’t doing and my compassionate and wise friend reminded me all that I had accomplished. I realized she was right! I had been focusing on what I wasn’t...
Angelina Jolie Pitt Nails It

Angelina Jolie Pitt Nails It

Yesterday, this New York Times article was getting a lot of attention on social media so I decided to read it. I’m glad I did. I admire Angelina Jolie Pitt’s courageous choices to not only prevent cancer, but to share her experience and bring awareness to others, I am fascinated and grateful at the strides that have been made in identifying these markers that give patients preventative options, and I just really, really liked this quote: The beautiful thing about such moments in life is that there is so much clarity. You know what you live for and what matters. It is polarizing, and it is peaceful. This struck me and seemed to transport me to moments, though different than hers, when I faced similar fears about myself, my daughter, and other loved ones. And I think she nailed it. Though terrifying, it is peaceful. Though tough decisions have to be made, they are easy because there is so much clarity about what really matters. These moments are polarizing, clearing out all the minutia and making room for peace. Don’t get me wrong. I’m not trying to draw a direct comparison from a mother facing cancer to a child with special needs, but I think anyone facing a severe, life threatening health concern within their family can relate to what she said and understand those feelings. And that’s why it matters that she is willing to talk about it in such a public way and spread awareness. And that’s why I think it matters that we are all willing to talk about our stories. You never know the impact you...