Tips for a Care Conference

Tips for a Care Conference

The children’s hospital that we go to has has a huge initiative around making sure that there is transparency between the patients, parents and the medical staff. In order to make this happen over the course of the last couple of years they have started doing shift changes in front of the patient and parents (unless requested not to). Parents have always been invited to attend rounds, which is when every person involved in your child’s care during the hospital stay gets in the room and discusses the events of the previous day and the upcoming plan. My husband and I became very familiar with these when my daughter was in the NICU. We attended rounds as often as we were able. In this realm, often during some of a patients¬†final hospital stays, parents can call ask for a Care Conference. This is a meeting with all of your child’s major doctors. It’s similar to rounds but it would include all of your care providers, including your Pediatrician. The only people that know your child and their care like you do, only like… half as much… With my hospital, care conferences can be arranged by working with a hospital social worker but as the parent, you are the boss. You can work with your Pediatrician to make this meeting happen at any time during your complex child’s care. Having a hard time putting one together? It’s understandable, these are important, and usually very busy, people! ¬†In a pinch? Make it a conference call. It’s important, you can make it happen, if they care about you and your child, they...
Love the Patient

Love the Patient

This is a continuation of a small talk I gave at a nurses’s residency training last week. For part one, click here. After letting the nurses know that it was important to us for them to love the parents, I wanted talk about and share examples of is loving the patient. Oh sure, nurses know these things, even people who aren’t nurses can tell you that you are a better nurse if you care about the patients. But I mean really caring about them. And I will share an example of when I saw this in action. When Dylan was in patient for surgery on her spine we noticed that every time she was out of her bed and in our arms her nurse would come and mess with her bedding. She was always turning, fluffing and changing things. Frequently she would comment about the new cute blanket she found to put on her bed and she would make things all nice and neat before she left. After seeing her do all this fussing for a day or two I finally asked her about it. I told her no one messed with Dylan’s bed like she did and inquired as to what she was doing all these time. I was nice of course, just curious! She told me that everyone likes to turn their pillow over to the fresh side and everyone LOVES clean sheets! So this is something that she always does for her patients that can’t do it for themselves. My heart burst. At only 9 months old, this nurse was treating my baby like she was...